Coordinating and Managing Care

Posted on: February 11, 2011

Illinois Medical Home Project

About Medical HomeFor ProvidersFor Youth & Families

A medical home is an approach to providing primary care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective.  In a medical home, the primary care team develops a trusting relationship with the family and works as a partner to assure that all of the child’s needs are met.

Through its medical home initiatives, ICAAP works with individual physicians, primary care practices, and community and state agencies to support the dissemination and implementation of the medical home model, with a focus on improving services for children with special health care needs.

Key resources for coordinating and managing care including care notebooks and medical summaries are linked below:

Utah Care Notebook

Utah Family Voices Health Information and Support Center

This care notebook is an organizing tool for families who have children with special health care needs. [...more]

Portable Medical Summary

A tool that can be used to a track a person’s medical history and to inform health care providers. [...more]

Child’s Health Record: Personal and Portable (2005)

Alameda County Medical Home Project

This comprehensive, portable medical record can be used to monitor a child’s health status to communicate accurate information to health care providers. [...more]

Emergency Information for Children With Special Needs

American College of Emergency Physicians, American Academy of Pediatrics

This tool can be used to provide important information to health care providers in case of an emergency. [...more]

Children’s Medical Organizer

Children’s of Minnesota

A free, easy-to-use website that helps you organize your family’s medical history. [...more]

FIN (Family Information Notebook)

Monroe Carell, Jr. Children’s Hospital at Vanderbilt

This notebook is designed to help families coordinate many aspects of their child’s care and health. [...more]


For more information about ICAAP’s medical home initiatives, please contact:

Kathy Sanabria, MBA, PMP
Senior Director, Medical Home Initiatives
Illinois Chapter, American Academy of Pediatrics
1400 W Hubbard, Suite 100
Chicago, IL 60642
Phone: 312/733-1026 ext 208
Fax: 312/733-1791