Medical Home Links for Families

Posted on: February 13, 2011

Illinois Medical Home Project

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Illinois Resources

Division of Specialized Care for Children

The Division of Specialized Care for Children (DSCC), the Illinois Title V agency for Children and Youth with Special Health Care Needs (CYSHCN), provides care coordination and other services for children with special health care needs.  The DSCC website has a wealth of information for families. [...more]

Family to Family Health Information and Education Center

The Family to Family Health Information and Education Center serves families of children and youth with special health care needs by providing information and referral services, health-related trainings, specialized training for parent leaders and organizations, and linkages to local, regional, statewide, and national partners. [...more]

Arc of Illinois

The Arc of Illinois provides extensive informational materials and trainings for individuals with disabilities and their families.  Members of the Arc receive daily emails with breaking news related to people with disabilities. [...more]

National Resources

Maternal and Child Health Library: Children and Youth with Special Health Care Needs Knowledge Path

The Knowledge Path provides resources for families and professionals on caring for CYSHCN.  The site also includes information on specific aspects of care and development, such as early intervention and special education, financing services, rehabilitation, screening, and transition. [...more]

Medical Home Portal

The Utah Medical Home Portal is a comprehensive website that offers medical home resources for both families and professionals.  The site is easy to navigate and provides extensive information and tools to help improve care for CYSHCN. [...more]

Center for Medical Home Improvement

The Center for Medical Home Improvement maintains an online resource center with numerous references on medical home transformation, evidence, measurement, care coordination, and more. [...more]

Region IV Genetics Collaborative

The Region IV Genetics Collaborative has developed a number of resources and informational materials for children with inherited disorders, including a helpful guide for families entitled Partnering with your Doctor: The Medical Home Approach. [...more]

The MCHB National Centers

National Center for Medical Home Implementation, American Academy of Pediatrics

The National Center for Medical Home Implementation provides medical home resources including technical assistance, advocacy materials, tools, and guidelines for care.  [...more]

Healthy & Ready to Work

Healthy and Ready to Work provides information and connections to health and transition expertise.  The website focuses on understanding systems, access to quality health care, increasing the involvement of youth, and providing tools and solutions to improve transition. [...more]

The Catalyst Center

The Catalyst Center is dedicated to improving health care insurance and financing for CYSHCN. The Center partners with stakeholders to expand health insurance coverage, close the gaps faced by underinsured families, develop and disseminate financing strategies, and enhance knowledge and collaboration among key stakeholder groups around financing issues. [...more]

National Center for Hearing Assessment and Management

The National Center for Hearing Assessment and Management supports early and continuous screening and works to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate intervention. [...more]

Family Voices

Family Voices works to ensure that all CYSHCN receive family-centered care by providing families with information and tools, building partnerships between professionals and families, and engaging in advocacy for policy change.  [...more]

National Center for Cultural Competence

The National Center for Cultural Competence provides information, tools, and resources to help providers deliver culturally and linguistically competent care to diverse patient populations.  [...more]

ChampionsInC

Champions for Inclusive Communities (ChampionsInC) is a national leadership and resource center designed to support states and communities in organizing services so families of children and youth with special health care needs can use them easily and families are satisfied. [...more]