Resources for Families
Resources for Youths and Families for ICAAP’s Transitioning Youth to Adult Care Course
Below are a number of resources and tools to help youth and families in the transition from pediatric to adult health care. The project-developed tools were created by pediatricians in practice, transition experts, youth, and parents and the remaining resources are nationally validated tools and resources from partner organizations.
The development of these resources is supported by a state implementation grant from the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau.
The resources below were developed by ICAAP and Specialized Care for Children at the University of Illinois at Chicago.
Health and the Transition to Adulthood: Building the Foundation for Success: The Integrated Services Committee of the Illinois Chapter of the American Academy of Pediatrics and UIC Specialized Care for Children presented a webinar for parents and families on incorporating health goals into IEPs and transition plans. The recording of this webinar is available here and the slides are available here. The resources and tools discussed in the webinar are available in the table below.
Cerebral Palsy Guide provides a trustworthy, caring resource for families and individuals affected by cerebral palsy. For more information, please visit the Cerebral Palsy Guide website.
College Resources for Students with Disabilities find specific information and resources on a variety of different disabilities, learn how to make the transition into the workforce easier, and find out what your legal rights on campus are. College Resources for Students with Disabilities
Scholarships for Students with Disabilities discover scholarships, both narrowly- and broadly-focused, that can help students with disabilities pay for their educations, as well as additional resources for obtaining funding. Scholarships for Students with Disabilities website.
The Adolescent Health Initiative at the University of Michigan Health System developed a number of videos for teens and parents about building independence and self-advocacy and preparing teens to transition to adult-oriented care and navigate the healthcare system. View the video library here.
The College Affordability Guide is a website that helps students and families research affordable, non-for-profit colleges and provides clear information about colleges, financial aid, transferring credit, and more. View the website here.
Winning in College: A Guide for Students with Disabilities is a resource that covers transitioning into college, rights of students with disabilities, disability documentation, scholarships, choosing the right school, and many other topics. View the guide here.
For more information, please contact:
Manager, Prevention Programs and Medical Home Initiatives
Illinois Chapter, American Academy of Pediatrics
1400 W Hubbard, Suite 100
Chicago, IL 60642
Phone: 312/733-1026 x207