Resources for Families

Resources for Youths and Families for ICAAP’s Transitioning Youth to Adult Care Course

Below are a number of  resources and tools to help youth and families in the transition from pediatric to adult health care. The project-developed tools were created by pediatricians in practice, transition experts, youth, and parents and the remaining resources are nationally validated tools and resources from partner organizations.

The development of these resources is supported by a state implementation grant from the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau.

The resources below were developed by ICAAP and Specialized Care for Children at the University of Illinois at Chicago.

Health and the Transition to Adulthood: Building the Foundation for Success

The Integrated Services Committee of the Illinois Chapter of the American Academy of Pediatrics and UIC Specialized Care for Children presented a webinar for parents and families on incorporating health goals into IEPs and transition plans. The recording of this webinar is available here and the slides are available here. The resources and tools discussed in the webinar are available in the table below.

Cerebral Palsy Guide provides a trustworthy, caring resource for families and individuals affected by cerebral palsy. For more information, please visit the Cerebral Palsy Guide website.


For more information, please contact:

Dru O’Rourke
Manager, Immunizations and Medical Home Initiatives
Illinois Chapter, American Academy of Pediatrics
1400 W Hubbard, Suite 100
Chicago, IL 60642
Phone: 312/733-1026 x207
Fax: 312/733-1791



Resources and Tools for Families
File Name Size Link
TransitionAdulthoodTeen.pdf 571 KB Transition to Adulthood Handout for Teens
HealthCareTransition.pdf 457KB Health Care Transition Handout
ChecklistTeens.pdf 284 KB Transition Checklist for Teens
ChecklistCaregiver.pdf 242 KB Transition Checklist for Parents/Caregivers
HowWellKnowHCNeeds.pdf 239 KB How Well Do You Know Your Health Care Needs?
TransitionAdulthoodParent.pdf 884 KB Transition to Adulthood Handout for Parents and Caregivers
DifferencesInCare.pdf 559 KB Differences In Care
TransitionTimeline.pdf 1,366 KB Transition Timeline
TransitionIssuesSpecialNeeds.pdf 915 KB Transition Issues for Adolescents with Special Needs Brochure
GuideToAdultBenefitsReadOrder.pdf 1,270 KB Guide to Adult Benefits, Services, and Resources
GuideToAdultBenefitsPrintOrder.pdf 1,209 KB Guide to Adult Benefits, Services, and Resources (for print orders)
Guardianship.pdf 761 KB Guardianship and Alternatives
DoYouUnderstandInsurance.pdf 347 KB Do You Understand Insurance?
FillingPrescription.pdf 456 KB Filling a Prescription
MedicalEmergency.pdf 431 KB What To Do In A Medical Emergency
TakeMedsAsDirected.pdf 337 KB Take Medications As Directed
WorkingWithDoctor.pdf 477 KB Working With Your Doctor
FindingAdultProviders.pdf 443 KB Finding Adult Providers
PortableMedicalSummary.pdf 137 KB Portable Medical Summary