Resources for Physicians

Resources for Physicians for ICAAP’s Transitioning Youth to Adult Health Care Course

Below are a number of quality improvement resources and tools to help pediatricians, internists, and family physicians obtain CME and MOC credit using ICAAP’s online learning platform, as well as policies, guidelines, and websites to assist physicians in transitioning youth from pediatric to adult health care. The project-developed tools were created by pediatricians in practice, transition experts, youth, and parents and the remaining resources are nationally validated tools and resources from partner organizations.

The development of these resources was supported by a state implementation grant from the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau.

For more information, please contact:

Dru O’Rourke
Manager, Prevention Programs and Medical Home Initiatives
Illinois Chapter, American Academy of Pediatrics
1400 W Hubbard, Suite 100
Chicago, IL 60642
Phone: 312/733-1026 ext 207
Fax: 312/733-1791
dorourke@illinoisaap.com

 

Registry Tools
Resources and Tools Related to Patient Registries
File Name Size Link
BasicExcelRegistry.pdf 14 KB Basic Excel Patient Registry
TransitionExcelRegistry.pdf 43 KB Transition Excel Patient Registry
GuideRegistryFormatting.pdf 211 KB Guide to Transition Registry Formatting
RegistryPracticeAssessment.pdf 166 KB Registry Practice Assessment
Project-developed Transition Resources and Tools
Resources and Tools Developed by ICAAP and IL DSCC for the Transitions Project
File Name Size Link
TransitionAdulthoodTeen.pdf 571 KB Transition to Adulthood Handout for Teens
HealthCareTransition.pdf 457KB Health Care Transition Handout
ChecklistTeens.pdf 284 KB Transition Checklist for Teens
ChecklistCaregiver.pdf 242 KB Transition Checklist for Parents/Caregivers
HowWellKnowHCNeeds.pdf 239 KB How Well Do You Know Your Health Care Needs?
TransitionAdulthoodParent.pdf 884 KB Transition to Adulthood Handout for Parents and Caregivers
DifferencesInCare.pdf 559 KB Differences In Care
TransitionTimeline.pdf 1,366 KB Transition Timeline
TransitionIssuesSpecialNeeds.pdf 915 KB Transition Issues for Adolescents with Special Needs Brochure
GuideToAdultBenefitsReadOrder.pdf 1,270 KB Guide to Adult Benefits, Services, and Resources
GuideToAdultBenefitsPrintOrder.pdf 1,209 KB Guide to Adult Benefits, Services, and Resources (for print orders)
Guardianship.pdf 761 KB Guardianship and Alternatives
DoYouUnderstandInsurance.pdf 347 KB Do You Understand Insurance?
FillingPrescription.pdf 456 KB Filling a Prescription
MedicalEmergency.pdf 431 KB What To Do In A Medical Emergency
TakeMedsAsDirected.pdf 337 KB Take Medications As Directed
WorkingWithDoctor.pdf 477 KB Working With Your Doctor
FindingAdultProviders.pdf 443 KB Finding Adult Providers
PortableMedicalSummary.pdf 137 KB Portable Medical Summary
ActivityTrackingSheet.pdf 70 KB Activity Tracking Sheet
TransitionCodingTips.pdf 284 KB Transition Coding Tips
Project-developed Resources and Tools – Spanish Translations
Resources and Tools Developed by ICAAP and IL DSCC for the Transitions Project – Spanish Versions
File Name Size Link
TransitionAdulthoodTeenSpanish.pdf 504 KB Transition to Adulthood Handout for Teens – Spanish Version
HealthCareTransitionSpanish.pdf 460KB Health Care Transition Handout – Spanish Version
ChecklistTeensSpanish.doc 200 KB Transition Checklist for Teens – Spanish Version
ChecklistCaregiverSpanish.doc 168 KB Transition Checklist for Parents/Caregivers – Spanish Version
HowWellKnowHCNeedsSpanish.pdf 290 KB How Well Do You Know Your Health Care Needs? Spanish Version
TransitionAdulthoodParentSpanish.pdf 907 KB Transition to Adulthood Handout for Parents and Caregivers – Spanish Version
DifferencesInCareSpanish.pdf 609 KB Differences In Care – Spanish Version
TransitionTimelineSpanish.pdf 1,456 KB Transition Timeline – Spanish Version
TransitionIssuesSpecialNeedsSpanish.pdf 873 KB Transition Issues for Adolescents with Special Needs Brochure – Spanish Version
GuideToAdultBenefitsSpanish.pdf 1,305 KB Guide to Adult Benefits, Services, and Resources – Spanish Version
GuardianshipSpanish.pdf 810 KB Guardianship and Alternatives – Spanish Version
DoYouUnderstandInsuranceSpanish.pdf 400 KB Do You Understand Insurance? Spanish Version
FillingPrescriptionSpanish.pdf 473 KB Filling a Prescription – Spanish Version
MedicalEmergencySpanish.pdf 457 KB What To Do In A Medical Emergency – Spanish Version
TakeMedsAsDirectedSpanish.pdf 375 KB Take Medications As Directed – Spanish Version
WorkingWithDoctorSpanish.pdf 506 KB Working With Your Doctor – Spanish Version
FindingAdultProvidersSpanish.pdf 508 KB Finding Adult Providers – Spanish
Quality Improvement Tools for Pediatric and Adult Providers
Quality Improvement Tools to Use with ICAAP’s Transition Courses
File Name Size Link
TransitionPlanningChecklist.pdf 246 KB Transition Planning Checklist
PediatricDataCollectionTool.pdf 270 KB Pediatric Data Collection Tool
AimsAndMeasuresGrid.pdf 221 KB Aims and Measures Grid
BarriersIdeasChangeGrid.pdf 231 KB Barriers Ideas Change Grid
PDSAPlanningWorksheet.pdf 48 KB PDSA Planning Worksheet
PDSAPlanningWorksheetEx1.pdf 161 KB PDSA Planning Worksheet Example1
PDSAPlanningWorksheetEx2.pdf 146 KB PDSA Planning Worsheet Example 2
DataCollectionToolAdult.pdf 123 KB Data Collection Tool – Adult-Oriented Health Care
BarriersIdeasChangeGridAdult.pdf 224 KB Barriers and Ideas for Change Grid – Adult-Oriented Health Care
AimsandMeasuresGridAdult.pdf 230 KB Aims and Measures Grid for Adult-Oriented Health Care
ChecklistAdultForm.pdf 249 KB Health Care Skills Checklist for Young Adults – Adult-Oriented Health Care
ChecklistGuardianForm.pdf 216 KB Health Care Skills Checklist for Parents/ Caregivers – Adult-Oriented Health Care
PatientChartFlowSheetTransitionAdult.pdf 242 KB Patient Chart Flow Sheet for Transition
Registry-survey-adult.pdf 183 KB Registry Survey for Adult-Oriented Health Care
Other Transition Tools
Other Tools for Use in Transitioning CSHCN to Adult Providers
File Name Size Link
Helping Patients Plan the Transition from Pediatric to Adult-Based Care.pdf 1,091 KB Helping Patients Plan the Transition from Pediatric to Adult-Based Care.pdf
CardFileRegistry.pdf 216 KB Card File Registry
Children with Special Health Care Needs Screener 384 KB CAHMI Children with Special Health Care Needs Screener
ExeterComplexityIndex.pdf 66 KB Exeter Complexity Index
LailComplexityScore.pdf 13 KB Lail Complexity Score
NAPComplexityScore.pdf 62 KB North Arlington Pediatrics Complexity Score
TransitionPolicyExamples.pdf 138 KB Transition Policy Examples, CMHI
TransitionPolicyKeyPoints.pdf 92 KB Transition Policy Key Points, Spectrum Family Medicine
ConsentReleaseInformation.pdf 82 KB Illinois Consent Form for Release of Information
JaxHATS: Trigger Questions n/a Trigger questions for health professionals assessing and managing adolescent patients with chronic illnesses
PetitionForGuardianship.pdf 77 KB Petition for Appointment of Guardian for Disabled Person, form CCP 0200
PhysicianGuardianshipReport.pdf 71 KB Report of Physician, form CCP 0211
Care planning templates various National Center for Medical Home Implementation Care Plans
PediatricCarePlan.pdf 511 KB Pediatric Care Plan
ActionPlan.pdf 133 KB Action Plan
EmergencyPlan.pdf 303 KB Emergency Plan
ComprehensiveCarePlan.pdf 1,054 KB Comprehensive Care Plan for CSHCN
AAP Medical Home Coding Fact Sheet 118 KB Index of CPT Codes for Medical Home
DSCCReimbursementGuidelines.pdf 380 KB Reimbursement Guidelines for Medical Home Services from Illinois DSCC
Policies and Guidelines
Policy and Guidelines Related to Transitions to Adult Care for YSHCN
File Name Size Link
AAP Clinical Report on Transition 4698 KB Clinical report:Supporting the healthcare transition from adolescence to adulthood in the medical home
AAP Consensus Statement on Health Care Transitions 224 KB A consensus statement on health care transitions for young adults with special health care needs
AAP Policy Statement Achieving Quality Health Services for Adolescents 98 KB Achieving Quality Health Services for Adolescents
AAP Policy Statement Providing a Primary Care Medical Home for Children and Youth with Cerebral Palsy 265 KB Policy on Providing Medical Home to Children/Youth with Cerebral Palsy
Clinical Report Transition Algorithm 74 KB Clinical Report Transition Algorithm
Articles and Guides
Articles and Guides Related to Transitioning YSHCN to Adult Care
File Name Size Link
Cliff notes for using the TPT in clinic 61 KB Cliff notes for using the TPT in clinics
Planning for Health Care Transition 279 KB Planning for health care transition: Results from the 2005-2006 National Survey of Children with Special Health Care Needs
Health Care Transition 261 KB Health care transition: Destinations unknown
Youth, Family and Provider Perspectives 265 KB Health care transition: Youth, family, and provider perspectives
RegistriesEvalPatientOutcomes.pdf 1,196 KB Registries for evaluating patient outcomes: A user’s guide
Improving Chronic Disease Care with Patient Registries 179 KB Using a simple patient registry to improve your chronic disease care
Confidentiality in Adolescent Health Care n/a Adolescent Health Care, Confidentiatlity
ProvidersGuideHIPAA.pdf 59 KB A health care provider’s guide to the HIPAA privacy rule
ILConsentLaws.pdf 101 KB Illinois Consent and Confidentiality Laws Fact Sheet
MinorConsentLaws.pdf 217 KB An Overview of Minors’ Consent Law
TipsProtectingConfidentiality.pdf 56 KB Tips for Protecting Youth Confidentiality
ProtectingConfidentialServices.pdf 276 KB Protecting Confidential Health Services For Adolescents and Young Adults
Affordable Care Act Catalyst article 2,681 KB Affordable Care Act: A Side-By-Side Comparison
IllinoisInsuranceFacts.pdf 61 KB Illinios Insurance Facts: National Health Insurance Reform – Comparison to Current Illinois Law
MedicalHomeTransitionPlanning.pdf 348 KB Medical home and transition planning for children and youth with special health care needs
Websites
Websites for Use with the Transitions Course
Name/Link
Institute for Healthcare Improvement
AAP/MCHB Building Your Medical Home toolkit
AAP EQIPP Medical Home for Pediatric Primary Care
DSCC Transition Information and Resources
Healthy and Ready to Work (HRTW) National Resource Center
Got Transition?
Prioritize My Goals
Healthy Transitions New York
HealthCare.gov Insurance Option Finder
Illinois Healthcare Portal Health Program Finder
Healthcare & Family Services Insurance Programs
Illinois Department of Insurance Health Insurance Programs
Illinois Department of Insurance HIPAA- Pre-existing Conditions Information
CF Foundation
Needy Meds
Illinois Lifespan Directory
Family to Family Health Information and Education Center
Rehabilitation Institute of Chicago Life Center
Department of Human Services
Chicago Legal Clinic, Inc.
Illinois Guardianship and Advocacy Commission
List of Illinois Circuit Courts
Illinois Attorney General Office pro bono services
American Bar Association pro bono services
Cook County Adult Guardianship Help Desk: Elder Law Clinic at (312) 915-6775
Illinois Legal Aid website search engine for legal advice
Illinois Health Care Surrogate Act
Shared Care Plan
My Medical
Smart-ICE
ICAAP Illinois Provider Directory
Payment and Finance section of the National Center for Medical Home Implementation web site
DSCC Website
AAP Pediatric Coding Newsletter Online
HFS Fee Schedule
AAP Coding Hotline
AAP Coding Calculator
Illinois Chapter, American Academy of Pediatrics (ICAAP) Website College Resources for Students with Disabilities Scholarships for Students with Disabilities

Family to Family and the Arc of Illinois have developed fact sheets for a number of transition topics, including financial assistance and adult providers. The resources are available here.